As we have stabilized we are all starting to feel the exhaustion of the past two weeks and there is not quite as much to report each day (thank you Jesus!). She continues to be stable and to make small improvements each day. Since stabilizing we are adjusting to a new normal and she is adjusting to her new realities. We rejoice over the baby steps forward that we make each day and we trust Jesus with the disappointments that are a part of the journey.
This morning they removed the 40+ staples in her head from the craniotomy which was a great blessing and step forward. Sadly, she did not pass the swallow test. This was disappointing to us and even more disappointing to her. But the therapists told us they see progress. They will start some daily swallow therapy tomorrow where she will get to enjoy a few bites of something other than ice chips each day! They also said she could have some sips of water. She was thrilled about that!
After the test results she said, “I failed. I feel discouraged. But it could be so much worse. I got to taste pudding and juice. So I’m grateful!” What a perspective. If only we all were so grateful for the small things.
To say that she is a sweet and easy patient is an understatement. A nurse confessed to us last night that she is the most appreciative patient on the floor and one of the nurses’ favorites. We were not surprised! She talks about Jesus and others regularly and through her amazing spirit reminds us to be thankful for the little things each day!
This morning after her staples were removed and she was hurting and exhausted she said to me “I keep thinking about the verse that says He is the lifter of my head because I can’t even lift my head by myself.” So we read Psalm 3 together and then I played a song that she has loved for years from the Brooklyn Tabernacle Choir. We listened to it together and Jesus strengthened both of our hearts. These are truly holy moments!
Thank you for your continued prayers for swallowing, no infection, encouragement, peace, healing, courage and strength for each new day. Pray for us as we start making decisions about the next steps.
Today we went to pick her up some head scarfs that will hopefully make her feel a little prettier. The lady who helped us told us her Mom had brain surgery and she knew just the scarfs that work best! Jesus is in even that. Just like Mom says, “its the little things.”
Thank you to those who have sent precious gifts…they all bring encouragement and comfort (which is what she needs the most). From a little Christmas tree in her room, to beautiful flowers, to a soft blanket…she has been blessed by each little touch! We read her your notes and emails on her good days and she is so encouraged by each one.